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August 14, 2008
New Study Opens at Duke ALS Clinic
Today we
will start enrolling patients with ALS and
other motor neuron diseases, as well as
healthy controls in a study to look for
biomarkers that might someday help us
diagnose and follow ALS more easily. This is
an incredibly important study, as earlier
diagnosis and easier follow up are needed to
optimize our search for better disease
modifying therapies. We also have a few more
spaces left in our clinical trial of Zenvia
for treating the pathological laughing and
crying that sometimes occurs in ALS. See our
research page
for more details.
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August 1, 2008
Good News for Veterans with ALS!
The past
month has been a good one for veterans with
ALS. In July, Secretary Peak decided to make
ALS a service connected disability. This was
one of the 3 issues we went to Washington in
March to advocate for (see previous news
story dated March 11, 2008). The policy
change, which goes into effect this month,
should significantly ease the financial
burden previously endured by veterans with
this disease. Also this month, we received
news that our project "A Clinical
Demonstration of an EEG Brain-Computer
Interface for ALS Patients" received full
funding support from the VA Cooperative
Studies Program. This project will allow
veterans with ALS to access a state of the
art system for communication which requires
no movement whatsoever…it is fully
controlled using brainwaves! We expect to
start enrolling patients by early 2009.
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July 26, 2008
Spreading the Word
Dr. Bedlack
was out on the road this month, spreading
the message of hope and optimism that
permeates our clinic. Last week he delivered
Grand Rounds at Crozear Medical Center
outside Philadelphia. Today he spoke at a
meeting of support group leaders from NC and
SC. He will be speaking at a number of other
hospitals and support groups in coming
months.
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July 23, 2008
Best Doctors, Best Hospitals….Again!
Duke ALS
Clinic Director Richard Bedlack was honored
for the 3rd year in a row in being selected
by his peers as one of America’s Best
Doctors. Only the top 5% of physicians in
the United States receive this honor each
year. See the details at
http://www.businessnc.com/index.php?src=gendocs&ref=BestDocs2008&category=BestDocs.
Also, earlier this month, Duke Hospital was
again selected as one of the top 10
hospitals in the country by US News and
World Report. This marks the 19th straight
year that Duke has made this list of top
hospitals. For details see
http://health.usnews.com/articles/health/best-hospitals/2008/07/10/best-hospitals-honor-roll.html
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July 22, 2008
Miss North Carolina Visits Duke ALS Clinic
Amanda
Watson, the newly crowned Miss North
Carolina, visited our Duke ALS Clinic today.
She continues to do an amazing job raising
awareness of ALS. We wish her well on her
campaign to become Miss America. The visit
was covered by WRAL. See
http://www.wral.com/lifestyles/healthteam/story/3258013/
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July 11, 2008
Jill Hollis on The Story with Dick Gordon
Duke PAL
Jill Hollis continues to tell her amazing
story and by doing so, raises awareness of
ALS and its treatment options. Listen to her
3rd segment on national news show The Story
with Dick Gordon
http://thestory.org/archive/the_story_557_Jill_Hollis_500_Things.mp3/view
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