This notice applies to all information collected or submitted on the Duke ALS Clinic website. On some pages, you can make requests and/or register to receive materials. The types of personal information collected at these pages are:

Name
Address
Email address
Phone number
 

On some pages, you can submit information about other people.  In this circumstance, the types of personal information collected are:

Name
Address
Email address
Phone Number
 

The Way We Use Information:  (back to top)

We do not share information you provide about yourself or other people with outside parties except to the extent necessary to complete your request for information or services.

We use phone numbers & return email addresses to answer the requests we receive. Such numbers and addresses are not used for any other purpose and are not shared with outside parties.

We use non-identifying and aggregate information to better design our website and to share with advertisers. For example, we may tell an advertiser that X number of individuals visited a certain area on our website, or that Y number of men and Z number of women filled out our registration form, but we would not disclose anything that could be used to identify those individuals.

Finally, we never use or share the personally identifiable information provided to us online in ways unrelated to the ones described above without also providing you an opportunity to opt-out or otherwise prohibit such unrelated uses.

Our Commitment To Data Security  (back to top)

To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we have put in place appropriate physical, electronic, and managerial procedures to safeguard and secure the information we collect online.

Our Commitment To Children's Privacy:  (back to top)

Protecting the privacy of the very young is especially important. For that reason, we never collect or maintain information at our website from those we actually know are under 13, and no part of our website is structured to attract anyone under 13.

How You Can Access Or Correct Your Information  (back to top)

You can access all your personally identifiable information that we collect online and maintain by contacting us via email.  We use this procedure to better safeguard your information.

You can correct factual errors in your personally identifiable information by sending us a request that credibly shows error.

To protect your privacy and security, we will also take reasonable steps to verify your identity before granting access or making corrections.

How To Contact Us  (back to top)

Should you have other questions or concerns about these privacy policies, please send us an email at bedla001@mc.duke.edu.