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Duke PALS in Action

Affecting about 1 in 20,000 people,

ALS (Amyotrophic Lateral Sclerosis, also known as Lou Gehrig's Disease) is a degenerative disease of motor neurons in the brain and spinal cord.

It starts very slowly and innocently, sometimes with the slightest weakness in a hand or a foot, or with muscle twitching. Unfortunately, unlike more benign conditions that all of us experience from time to time, ALS continues to progress. The weakness and the twitching spread to involve more muscles, eventually those that control speech and swallowing. Over time, the disease gradually robs the bearer of independence. The lifespan is shortened, usually to 2-5 years from diagnosis. The cause of disease in most patients is not known.

Dear Patients with ALS (PALS),

The ALS Research Group is interested in your

thoughts about our ALS clinics and the research

studies we offer there. Thanks for taking the 

time to complete this very brief survey. It should

take about 20 minutes to complete. We hope this

will improve what we can offer you in our clinics.

You can skip any question you don’t want to

answer or don’t know how to answer. Please

complete this only if you have ALS. Please

complete it only one time. Click here if you are

willing to complete it now.
 

Learn more about Duke ALS Clinic...
ALS is a tough disease. It calls for an organized aggressive approach. We start by confirming the diagnosis and excluding ALS mimics.
If ALS is confirmed we use the latest disease modifying therapies
to slow progression. Read More...
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